I know from experience that this video is only a glimpse into what your family goes through. Your video touches my heart in such a way that no one can help but feel the compassion you have for your son & family. My son has epilepsy & I have been through many "life lessons" with my three sons from the many stitches, broken protruding bones, two surgeries for severe pectus excavatum (and another to come), club foot, not to mention all the bumps & bruises. But nothing could have prepared us for the Saturday morning that our youngest had his first tonic clonic seizure. A light bulb went off in my head when it went from a mild partial seizure that we had not recognized as a seizure for several months. I never experienced the feeling I had that morning of the heartbreak for my son. Luckily we have been able to control his seizures for the most part. My best wishes to you & your family.
Andrea
- Sep 2, 2008 9:25 PM
What a sweet precious boy you have. I cannot fathom what he has to go through every day. Poor baby :(
He is very lucky to have such a devoted mom as yourself. Your video has really touched me. Thank you for sharing his story.
Hi, Carrie!!! It's Amy Smith (DeLamar). Remember me from high school?? My grandma sent me the article in the paper of your precious boy! She just thought it was a nice story and sent it to me and I recognized your name. What a great video and story...Could you please email me?? My address is amysmith_lasvegas@yahoo.com.
What a beautiful job you did. I loved it so much it inspired me to create my own for Brandon. I cry every time I watch it. My parents both watched it too and think that it was perfect. You are such a great Mom and you inspire me to be a greater mom. I am always here for you and your family.
Carrie, I think that your video is magnificent. You did a great job. I keep you and your little one in my prayers. Please don't let other's who are quick to judge, get under your skin. Please remember that ultimately, their opinions do not matter. You do what you need to do to get the best help for your son and to raise awareness. I applaud you in your efforts.
carrie harpole
- Mar 14, 2008 11:45 AM
Peter, This is a video that we made to share with the state legislators to show them our worst possible days. They need to understand that we need better funds,research, and insurance for our children. Yes, I agree with you that everyone is different who has seizures, but I was sharing mine son's story who has a VERY severe form and to be straight foward with you this is our life. Everything I put in that video is honest and they need to see and know what we do go through. This was not made in intentions to say that everyone who has epilepsy lives the same as Alex, but that is how he lives and I would do anything in the world to change that, but there is nothing they can do for him.
The vast majority of people who have seizures are prepared to fight to be treated by others no differently to the norm. Alex's situation is extreme and I feel for him and his family. There is no question the video portrays Alex as different, and ignores any attributes he has that are normal. I wonder if it is a true reflection of Alex and if that is how he wants to be seen. Unfortunately the video gives the impression that everyone who has a seizure is different.
Alex's Journey
"Your So Amazing.."
"You Are An Inspiration To Us All, ...
"You Are An Inspiration To Us All, You Are Our Hero And A Fighter!!!"
by
carrie
:: 1722 views
added 9/9/08 :: last modified 1/21/12
terri - Apr 27, 2009 4:36 PM
I know from experience that this video is only a glimpse into what your family goes through. Your video touches my heart in such a way that no one can help but feel the compassion you have for your son & family. My son has epilepsy & I have been through many "life lessons" with my three sons from the many stitches, broken protruding bones, two surgeries for severe pectus excavatum (and another to come), club foot, not to mention all the bumps & bruises. But nothing could have prepared us for the Saturday morning that our youngest had his first tonic clonic seizure. A light bulb went off in my head when it went from a mild partial seizure that we had not recognized as a seizure for several months. I never experienced the feeling I had that morning of the heartbreak for my son. Luckily we have been able to control his seizures for the most part. My best wishes to you & your family.
Andrea - Sep 2, 2008 9:25 PM
What a sweet precious boy you have. I cannot fathom what he has to go through every day. Poor baby :(
He is very lucky to have such a devoted mom as yourself. Your video has really touched me. Thank you for sharing his story.
elsa - Sep 2, 2008 4:03 PM
so so so so sad
Amy - Aug 29, 2008 9:32 PM
Hi, Carrie!!! It's Amy Smith (DeLamar). Remember me from high school?? My grandma sent me the article in the paper of your precious boy! She just thought it was a nice story and sent it to me and I recognized your name. What a great video and story...Could you please email me?? My address is amysmith_lasvegas@yahoo.com.
Lisa - May 12, 2008 7:39 AM
Carrie,
What a beautiful job you did. I loved it so much it inspired me to create my own for Brandon. I cry every time I watch it. My parents both watched it too and think that it was perfect. You are such a great Mom and you inspire me to be a greater mom. I am always here for you and your family.
Your friend,
Lisa
Misty - Mar 17, 2008 8:03 AM
Carrie, I think that your video is magnificent. You did a great job. I keep you and your little one in my prayers. Please don't let other's who are quick to judge, get under your skin. Please remember that ultimately, their opinions do not matter. You do what you need to do to get the best help for your son and to raise awareness. I applaud you in your efforts.
carrie harpole - Mar 14, 2008 11:45 AM
Peter, This is a video that we made to share with the state legislators to show them our worst possible days. They need to understand that we need better funds,research, and insurance for our children. Yes, I agree with you that everyone is different who has seizures, but I was sharing mine son's story who has a VERY severe form and to be straight foward with you this is our life. Everything I put in that video is honest and they need to see and know what we do go through. This was not made in intentions to say that everyone who has epilepsy lives the same as Alex, but that is how he lives and I would do anything in the world to change that, but there is nothing they can do for him.
peter - Mar 13, 2008 11:38 PM
The vast majority of people who have seizures are prepared to fight to be treated by others no differently to the norm. Alex's situation is extreme and I feel for him and his family. There is no question the video portrays Alex as different, and ignores any attributes he has that are normal. I wonder if it is a true reflection of Alex and if that is how he wants to be seen. Unfortunately the video gives the impression that everyone who has a seizure is different.